I went up and woke him up at 9:30. Gilad was already ready to play Minecraft, so I got him downstairs after a few minutes and they play for about half an hour. He played piano as I finished up the work I was doing. He played an amazing piece that I wished I had been able to record. We had eaten the last two scones for our breakfast. We then headed upstairs for lots and lots of wrestling. We aren’t covering much ground nowadays, but at least he’s getting some exercise.
I finally got him back downstairs as I was hungry. He realized that he hadn’t actually had his full morning time, and his time with Gilad was short as well, so I let him play a bit more, in his island world.We were listening to some Made in Heights. For lunch I got together some crackers with tuna and watermelon and tofu and we ate outside. He had a full Myna and Sister Minecraft game with Myna making something called “saplings of luck” and a wither farm. Sister would plant a sapling of luck and something random would grow. One time it was a bunch of villagers and August said they were saying “Vengeance! Vengeance!”
We went back upstairs (he did a “going upstairs” song and dance) for more wrestling, then watched a video about cataracts, and part of the first Crash Course World History video about the Roman Empire. We then did a Ms. Safe game with a new student with cataracts, named Idontno (after Ms. Safe misheard her say “I don’t know”).
We went downstairs and he played chess with Carly and I went up for a Zoom meeting with Marc and Omar for work. Carly had stayed home as she didn’t have much to do at school anyway and wasn’t feeling entirely well. They went outside and played chess, and were out there when I came down. I made a peanut noodle dish with bell peppers, broccoli, and broccoli for dinner and we ate inside.
He had called Colin a bit, then at six had Minecraft time with them. He was working on what started as his fishing platform in Vivian’s “Poop” world. It has now become a huge building, and he is really paying attention to details and had to rebuild a whole facade because he had built it one block off.
I went for a run. After Minecraft time was over he played chess with Cherie. She ad a new computer, so they could use Zoom and play chess on a share board using screen sharing. That still had some issues, but they did pretty well.
They played until about 9:20 and I then got him upstairs. We played on the bed, doing an alive, dead, coma game, which was actually pretty funny. I noticed him playing with a tooth and deduced it was loose. He wouldn’t admit it and told me, “You’ll forget it by tomorrow.” Apparently he tells Carly that as well. I was pushing him on what sort of things we’ve forgotten, but he didn’t have many examples. We were then discussing our daily schedule and plans.
Carly and I were trying to talk as he was being hyper and rolling on the bed. I used a certain voice to tell him he could be on the bed or in the bathroom, and he was laughing like crazy. He told me, “Stop using that voice! Stop being funny!” He called it the slave owner voice, after first calling it the bossy voice. “Give me back my independence!”
Carly gave him a bath and he was discussing her Minecraft builds and how he wants to build a mega base. He said to her, “With all due respect your house…” I got him into his bedroom and he ate his crackers and peanut butter. He listened to a short story called “Dropping the Ball” Then the full “Max Goodname” story. I didn’t realize there was a version of it that had it all in one file and not divided into parts, so it was 40 minutes long. I fell asleep for part of it. We then went and brushed our teeth. He overheard Carly talking to Cassie about medical advice for someone who was sick. August also told me, “Here’s something I want to learn how to do: be a criminal…I’d never steal anything. Well, except iPad time.”
We listened to a new (to us) Benge album. I squeezed his hand, and he said, “That actually feels really good. I can’t believe it feels good.” So I actually spent about 5 minutes squeezing his hands, and it seemed to help relax him. He did better going to sleep today not getting frustrated, and at one point as he started talking to me and realized I was mostly asleep he stopped himself. He was asleep right after midnight.
Just the end:
Song of the day:
Going upstairs dance:
His complex Minecraft build:
Chess with Oma:https://youtu.be/dFxNA9Lg2Bk
Silly time:https://youtu.be/a33M39SvbnE
